(Hybrid) Parent Network Specialist - Center for Excellence in Disabilities - Eastern Panhandle

• 37.5-hour work week
• 13 paid holidays (

• WVU offers a range of
• 401(a) retirement savings with 6% employee contribution match, eligibility to continue health insurance, and other retiree perks. Looking for

• Receives and responds to referrals to assist families in self-managing their child’s health care services.
• Organizes and/or participates in outreach activities including resource fairs and other community events, to inform target populations of the services available through the program
• Collaborates with other CED and state university programming
• Familiarizes with community resources and services that might benefit target populations
• Shares expertise with team.
• Provides organizational tools and guidance to families who have a need for more intensive support.
• Provides families with information about upcoming opportunities/local community events that are inclusive, accessible, and promote health & fitness, emotional competence, and socially engaging activities.
• Coaches families on self-advocacy skills.
• Provides families with information about the IEP process.
• Provides families with information about their child’s educational rights.
• Attends Circle of Parent support group model training and facilitates support groups.
• Attends required trainings and keeps current with required certifications
• Serves as parent-faculty In the WVU Family Experience/Project DOCC (Delivery of Chronic Care) simulation.
• Participates in meetings with the CSHCN social worker or nurse on cases that the Parent Network Specialist has been involved in or may soon become involved in.
• Regularly participates in local Family Resource Network meetings and other social service groups statewide.
• Participate in the Medical Advisory Board meetings.
• Conducts surveys, facilitates community meetings, and guides conversations in order to gather input from families about their experiences and needs.
• Assists families with the completion of self-assessments.
• Reports activities to program manager and records data according to established program guidelines.
• Participates in program development and improvement through periodic reviews of policies, procedures, promotional materials, and other components of program effectiveness.
• Assists in the review of new policies and strategic planning including the Block Grant application as requested.
• Keeps accurate medical records within the Health Insurance Portability and Accountability Act (HIPPA) guidelines and within the guidelines established by WV DHHR and CSHCN for Parent Network Specialists.
• Performs other CSHCN or CED duties related to the mission and purpose of a Parent Network Specialist as assigned by the Supervisor.

• High school diploma or equivalent

• A minimum of six (6) months of related experience
• Life experience as a parent/guardian of a child with a special health care need who has functional limitations and service needs.

• Any equivalent combination of related education and/or experience will be considered
• All qualifications must be met by the time of employment.

• Skilled to communicate complex information, and policies and procedures to others effectively, both orally and in writing, and to compose and write simple correspondence.
• First-hand parental experience and working knowledge of the principles and practices of family-centered care and of services to children with special health care needs and their families.
• Knowledge of technical assistive resources and referrals for children with disabilities.
• Ability to problem solve and take initiative in carrying out job responsibilities.
• Ability to apply judgment, discretion, and initiative in performing technical assistance and training for families of children with special needs.
• Ability to review materials regarding disabilities for their appropriateness for parents.
• Ability to effectively present information in one-on-one and small group situations to customers, clients, and other employees of the organization.
• Ability to travel to areas not accessible by public transportation.
• Demonstrated ability to plan, organize and coordinate meetings, and program presentations.
• Demonstrated ability to operate a personal computer utilizing various word processing and excel data base software packages.
• Ability to rapidly acquire a working knowledge of the University’s, Center’s and State Children with Special Health Care Needs’ policies and procedures.
• Ability to rapidly learn all academic, administrative and organizational policies and procedures within the affected program, and to interpret and apply these policies to unique work situations.
• Ability to independently identify appropriate applications of a wide variety of complex written policies and procedures in circumstances not clearly described by available guidelines.
• Ability to coordinate many different program tasks, determine relative importance of each, set deadlines and complete projects in a timely manner.
• Ability to maintain proper unit attendance and punctuality standards.

• Associate’s degree in a related field preferred

West Virginia University